November is National Hospice Month

Karen Ann Quinlan Hospice Reminds the Community that “#SoonerIsBetter!”

 

(Newton, NJ) – November is National Hospice and Palliative Care Month and hospice and palliative care programs across the country are reaching out to raise awareness about hospice and palliative care. Hospice is not a place but is high-quality care that enables patients and families to focus on living as fully as possible despite a life-limiting illness. Palliative care brings this holistic model of care to people earlier in the course of a serious illness.

“Every year, nearly 1.4 million people living with a life-limiting illness receive care from hospices in this country,” said Edo Banach, president and CEO of the National Hospice and Palliative Care Organization. “These highly-trained professionals ensure that patients and families find dignity, respect, and love during life’s most difficult journey.”

Hospice and palliative care programs provide pain management, symptom control, psychosocial support, and spiritual care to patients and their families when a cure is not possible.

Hospice and palliative care combines the highest level of quality medical care with the emotional and spiritual support that families need most when facing a serious illness or the end of life.

Throughout the month of November, Karen Ann Quinlan Hospice will be joining organizations across the nation hosting activities that will help the community understand how important hospice and palliative care can be.

More information about hospice, palliative care, and advance care planning is available from Karen Ann Quinlan Hospice by call 973-383-0115 or visiting our website at KarenAnnQuinlanHospice.org or from NHPCO’s CaringInfo.org.

Vides and stories from families showing the many ways hospice and palliative care make special moments possible can be found at www.momentsoflife.org.

IDLM partners with Karen Ann Quinlan Hospice to train EOL Doulas

NEWTON – International Doula Life Movement (IDLM) founder Anna Adams and Executive Director Pamela Carter visited the Karen Ann Quinlan Hospice administrative office to begin the IDLM – Death/End of Life Doula Specialist Program training. IDLM has partnered with Quinlan Care Concepts – Karen Ann Quinlan Hospice to provide training KAQ Hospice Volunteers and Employees to be End-of-Life Doulas.

Doula, n. (dou; la);

A non-medical professional who provides support to another individual during a time of transition by providing education, information and resources; emotional and holistic care; and physical support. 

“The doula movement is rapidly growing and for good reason. In times of transition or crisis, individuals and families need compassionate support to prepare emotionally for change. Well-trained doulas guide people to make the best choice for them,” said Anna Adams, founder of IDLM.

“The International Doula Life Movement offers international doulas — of all specialties — a values and mission-based education, resource center, and community committed to helping them support others,” said Adams.

A death doula is a person who helps support the dying or their loved ones through the end of life with non-medical support.

Left to right: Wood Hungarter, President, Karen Ann Quinlan Hospice, Anna Adams, Founder, International Doula Life Movement, Pamela Carter, Executive Director, IDLM and Lee Ellison, Director of Marketing and Media, Karen Ann Quinlan Hospice.

“We are thrilled to have Karen Ann Quinlan Hospice joining us and look forward to being a part of the Quinlan Care Concepts Team,” said Pamela Carter, IDLM Executive Director.

The trainings, generously funded by the Karen Ann Quinlan Friends of Hospice, started on Friday, May 3. Two trainings, with 10 students each, are planned for 2024 and more trainings will be held in 2025 for volunteers, employees and those in the community who wish to participate in this specialized, 70+ hour certification course. This initiative is part of the strategic plan for Quinlan Care Concepts to offer complete end-of-life services to the community. Upon graduation ILDM certified EOL Doulas will available to help families in the communities that we serve.

Anna Adams and Pamela Carter join students at the first session of IDLM – Death/End of Life Doula Specialist Program.

National Healthcare Decisions Day

Published by: National Hospice and Palliative Care Organization

National Healthcare Decisions Day, which is dedicated to inspire, educate and empower the public about the importance of advance care planning, is recognized each year on April 16. The goal is to engage everyone in conversations that encourage people to start to think about their own personal wishes for their health care, particularly at the end of life, and getting people to plan ahead, document those plans, and let loved ones know their wishes.

Advance care planning involves making future healthcare decisions that include more than deciding what care you would or would not want; it starts with expressing preferences, clarifying values, and selecting an agent to express healthcare decisions if you are unable to speak for yourself.

National Healthcare Decisions Day is a collaborative effort of national, state and community organizations committed to ensuring that all adults with decision-making capacity in the United States have the information and resources to communicate and document their future healthcare decisions.

In honor of National Healthcare Decisions Day, NHPCO encourages everyone to:

Have A Conversation

Advance care planning starts with talking with your loved ones, your healthcare providers, and even your friends- all are important steps to making your wishes known. These conversations will relieve loved ones and healthcare providers of the need to guess what you would want if you are ever facing a healthcare or medical crisis.

Complete Your Advance Directive

“Advance Directives” are legal documents (Living Will and Healthcare Power of Attorney) that allow you to plan and make your own end-of-life wishes known in the event that you are unable to communicate.

Engage Others in Advance Care Planning

Share brochures, information and advance directives to others in your family, workplace and community. Help others have a conversation about advance care planning.

“National Healthcare Decisions Day exists to inspire, educate and empower the public and providers about the importance of advance care planning.”

Remember….. Your Decisions Matter!

44th Anniversary – Quinlan Care Concepts

On our 44th Anniversary Karen Ann Quinlan Hospice is proud to announce the branding of our four divisions, Karen Ann Quinlan Hospice, Karen Ann Quinlan Home for Hospice, the Joseph T. Quinlan Bereavement Center and Quinlan Palliative Care under the umbrella of Quinlan Care Concepts. Each division name remains the same. Quinlan Care Concepts more accurately reflects the spectrum of services we offer and our commitment to being end-of-life specialists in the communities that we serve. Our quality, compassion, and commitment to those we serve remains the same. Stay tuned for more updates from your local, not-for-profit, award-winning hospice since 1980!

What is Palliative Care and how can it help?

Press Release

FOR IMMEDIATE RELEASE:

DATE: March 4, 2023

What is Palliative Care and How Can it Help?

NEWTON — There’s an important medical term that you may not have heard of: Palliative Care (pronounced PAH-LEE-UH-TIVE). “Palliate” means to make comfortable by treating a person’s symptoms resulting from a serious illness. Hospice is just one form of palliative care that many Americans have heard of.

Both hospice and palliative care focus on helping a person be comfortable by addressing issues causing physical or emotional pain, or suffering. Hospice and other palliative care providers have teams of people working together to provide care. The goals of palliative care are to improve the quality of a seriously ill person’s life and to support that person and their family during and after treatment.

For more than forty years, Karen Ann Quinlan Hospice has been caring for people at the end of life while hospice nationwide has served more than 1.5 million patients and their family caregivers each year.

Palliative care is specialized medical care for people living with a serious illness. This type of care is focused on providing relief from the symptoms and stress of the illness. The goal is to improve quality of life for both the patient and the family.

Palliative care is provided by a specially-trained team of doctors, nurses and other specialists who work together with a patient’s other doctors to provide an extra layer of support. Palliative care is based on the needs of the patient, not on the patient’s prognosis. It is appropriate at any age and at any stage in a serious illness, and it can be provided along with curative treatment.

Hospice focuses on relieving symptoms and supporting patients with a life expectancy of months not years. Palliative care may be given at any time during a person’s illness, from diagnosis on and is appropriate for any stage of a serious illness.

If you or a family member would like to learn more about Quinlan Palliative Care, please call 973-888-9100 a FREE consultation. You may also visit our website at https://www.quinlanpalliativecare.org.

Click here for a printable fact sheet. Click here for a Spanish printable fact sheet.

Karen Ann Quinlan Hospice can help you understand more about palliative care and hospice and determine what might be best for you or your loved one. Contact them at 800-882-1117 or visit their website www.karenannquinlanhospice.org.

Karen Ann Quinlan Memorial Foundation is passionately dedicated to providing hospice care for the terminally ill, bereavement for those who have lost loved ones palliative care for those seeking an extra layer of care while seeking curative treatment.

Serving North and Northwest NJ and the Pike County area PA; please call 800-882-1117 to reach any of our services. For programs, events, and more information visit www.karenannquinlanhospice.org.

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Taking time to listen as a Caregiver

The many tasks of caregiving can be so overwhelming that you just start doing things, maybe before you have really taken in what actually needs to be done. It is important to take the time to listen—to the person you are caring for, to the other people caring for them, and to yourself.

Listening to the Patient
You may be caring for someone who needs assistance with day-to-day chores and tasks but can still make their own decisions about personal matters such as medical care, financial and household issues. Take some time to listen and explore what kind of help they want. Often what we think someone wants or ought to want is not what they want at all. Sometimes people resist asking for help, even when it is clear they would benefit from assistance. If that is the case, start small and know that over time things will change as they learn to talk with their inner circle and realize what they want help with.

Knowing and understanding what someone wants will be important if you become responsible for making decisions for them. Read up on advance directives which will help you talk about medical decisions and fill out the documents. Not every situation can be anticipated so it is helpful to understand in general what is important to the patient—what they see as quality of life.

Listening to the doctors and other healthcare workers
You can offer to go to appointments with the patient and assist by taking notes and keeping track of papers, reports and prescriptions as you and the patient talk to the doctor. Take along the list of questions you generated together. Check with the patient during the appointment to be sure they are getting the information they want and need. Repeat back to the doctor any instructions to be sure they have been understood correctly.

Listen to yourself and reach out for information and support
Caregiving can be quite rewarding, and it can be quite challenging. Try not to have rigid expectations of how it will go or how you will feel. Showing up is good; perfection is the enemy. There are resources available to caregivers through government sponsored websites like MyHealthfinder as well as private organizations such as AARP and Caregiver Action Network.

Seek support groups of people caring for like patients; there are many online and in person. The National Institute of Aging, the CDC, the National Alliance on Caregiving, and AARP all are rich resources for help and connections. The American Cancer Society, the American Heart Association, and the Alzheimer’s Association as well as many other disease specific associations all have good information for caregivers.

Ten Things You May Not Know About Hospice Care.

Some people mistakenly think hospice care is just about dying…that hospice is the place you call when there’s nothing more that can be done. Nothing could be further from the truth. Hospice helps patients and families focus on living. Hospice care brings comfort, dignity, and peace to help people with a life-limiting illness live every moment of life to the fullest. It also reaches out to provide support for the family and friends who love and care for them. According to the NHPCO, in 2021 1.71 million Medicare beneficiaries were enrolled in hospice care for one day or more.

There are some important facts about hospice that people don’t know and this may be stopping people from getting the best care possible, when they need it most:

1. Hospice is not a place; it’s high-quality medical care that helps the patient and family caregivers focus on comfort and quality of life.

2. Hospice is paid for by Medicare, Medicaid, most insurance plans, HMOs, and managed care plans. Fear of costs should never prevent a person from accessing hospice care.

3. Hospice serves anyone with a life-limiting illness, regardless of age or type of illness.

4. Hospice serves people of all backgrounds and traditions; the core values of hospice—allowing the patient to be with family, including spiritual and emotional support, treating pain—cut across all cultures.

5. Research has shown that the majority of Americans would prefer to be at home at the end of life’s journey—hospice makes this possible for most people.

6. Hospice serves patients in hospitals, nursing homes, private facilities, or our Karen Ann Quinlan Home for Hospice; however most hospice care is given in the patient’s own home.

7. Hospice patients and families can receive care for six months or longer.

8. A person may keep his or her referring physician involved while receiving hospice care.

9. Hospice offers grief and bereavement services to family members and the community.

10. To get the most out of what hospice offers, it’s better to have care for more than just a few days.


If this information about hospice surprises you, take the time to find out more. The best time to learn about hospice is BEFORE someone in your family is facing a healthcare crisis. For more information, contact Karen Ann Quinlan Hospice at 800-882-1117. This information is provided by the National Hospice and Palliative Care Organization and Karen Ann Quinlan Hospice. Karen Ann Quinlan Memorial Foundation is passionately dedicated to providing Hospice care for the terminally ill and Bereavement for those who have lost loved ones. 

2023 Lights of Life – Featured Stars

Click here for a complete 2023 Lights of Life Memorial Program Booklet.

Click on the image above to view the 2023 Lights of Life – Featured Stars.

Happy Birthday Shirley!

 

This week Karen Ann Quinlan Hospice had the honor of sharing in the 100th Birthday of Shirley B. Her family celebrated with a banner, old photos, custom chocolate treats, flowers and balloons to help mark her special day. Grandchildren and other family members who couldn’t be with her for the celebration called her on the phone and some even reached out to her over video chat to extend their love and well wishes!

Shirley was born in 1923 in Amber, NY, and grew up in Skaneateles, NY. Shirley met her husband while at nursing school in Syracuse, NY. They were married in 1946 and had 4 children. As newlyweds, they lived in Syracuse, but eventually moved to Sparta, NJ, where they lived for about 50 years. At her birthday celebration Shirley spoke very fondly of Sparta; she loved living there!

Over the years, her family grew to 9 grandchildren and 5 great-grandchildren.

A dedicated healthcare professional, she worked as a Registered Nurse in Andover, NJ, and Newton, NJ, until the age of 89 years old.

Shirley spent the last 50 years as a member of the Lafayette Federated Church. For many years, countless people gathered in her home for Prayer Group and she also met with friends for weekly prayer. Her philosophy was that every day was a gift and her prayer was always that God would use her to be a blessing to all she would encounter throughout her day, as a nurse, mother, friend or stranger.

Happy 100th Birthday Shirley!

November is National Hospice and Palliative Care Month

The NHPCO recognizes National Hospice and Palliative Care Month

November is recognized annually as National Hospice and Palliative Care Month (HAPCM), a time for providers to reach out to their local communities, engage media contacts, and recognize the valuable contributions made by staff and volunteers. While HAPCM is a brief window of time meant to spotlight the importance of hospice and palliative care, helping the public understand the benefit of this type of serious-illness care and the importance of advance care planning are goals which our community should strive for year-round.

Each year, the National Hospice and Palliative Care Organization (NHPCO), establishes a theme for the month and creates outreach materials for members. The theme for HAPCM 2023 is Courageous Conversations.

In a culture that often teaches us to resist mortality and a healthcare system defined by , the seemingly simple act of having a conversation about dying can have a profound impact. What does death mean in my life? If I am faced with a terminal diagnosis, how would my values shape my end-of-life journey? How do I want my loved ones to engage with me toward the end of my life? It’s difficult to think about these questions but having these courageous conversations with ourselves, family, friends, and doctors can mean the difference between having the type of death a patient wants – one that matches up with their values and desires – and one that doesn’t allow them to have a say in their own end-of-life journey.

Throughout the month, NHPCO is encouraging everyone to have these Courageous Conversations to start a meaningful dialogue on “dying a good death.”

Supporting a friend who is grieving

Often people feel unsure about how to help someone who is grieving after a death or other major loss. What most people need after a loss is comfort and caring from family and friends. Listening, running errands or simply being present are a few examples of how you might support a grieving friend or family member.

When people are grieving (also known as mourning or bereavement), thoughts and emotions are often heightened. The most important thing you can do to show that you care is being present. Offering advice or suggestions about what a person should do or should be feeling is not needed. Instead, try to be comfortable being with the person you care about – lending an ear or holding a hand is a very helpful thing to do.

Acknowledge all feelings. Their grief reactions are natural and necessary. Do not pass judgment on how well they are or are not coping.

Understand and accept cultural and religious perspectives about illness and death that may be different from your own. For example, if a family has decided to not allow their children to attend the funeral because of their beliefs that children should not be exposed to death, support their decision even if this may not be what you would do.

Help the person to renew interest in past activities and hobbies, when they are ready, or to discover new areas of interest. Offer suggestions such as, “Let’s go to the museum on Saturday to see the new exhibit,” but be accepting if your offer is declined.

Be sensitive to holidays and special days. For someone grieving a death, certain days may be more difficult and can magnify the sense of loss. Anniversaries and birthdays can be especially hard. Some people find it helpful to be with family and friends, others may wish to avoid traditions and try something different. Extend an invitation to someone who might otherwise spend time alone during a holiday or special day, but be accepting if your offer is declined.

There is no right way to grieve and mourn. Be very careful not to impose your ideas, beliefs and expectations on someone else, no matter how much you think it might help. It is important to understand that the way a person might respond to a loss is unique to them.

What is the Coping With Loss Support Group and how can it help me?

The death of a loved one can be one of the most challenging, confusing and difficult experiences we encounter throughout our lifetime. The resulting grief and the wide variety of emotional experiences can be debilitating at times and may change often and quickly.

Bereavement care will help you identify strengths, difficulties, stressors, and coping skills that will help you adapt to a significant loss in your life. It can help you understand how you are responding to loss and provide support to help you deal with your grief. Reactions that people experience can be physical, emotional, social, and spiritual in nature. It’s important to remember that no two people will respond to a loss in exactly the same way.

A bereavement professional can assess how you are coping with grief and offer education and support. Most people feel strengthened, encouraged and supported when they learn about grief, understand how it affects them, identify coping strategies, and learn new methods to help themselves through the grief experience.

Karen Ann Quinlan Hospice offers adult peer support groups which can be tremendous resources during emotionally challenging times. They provide an opportunity to share your story with others as well as hear from others who have also experienced the loss of a loved one. Much can be gained from connecting with others who are also walking along this road of grief and to hear about what helped them and what experiences and obstacles along the way were most challenging.

Please call the Joseph T. Quinlan Bereavement Center at 973-948-2283 to speak with a counselor with any questions you may have regarding our support groups.

In Recognition of World Hospice & Palliative Care Day


Hospice and Palliative Care: Making a Difference

A hospice nurse was once asked, “How can you work in hospice – it must be so sad!”

She answered, “I love providing highly-skilled, compassionate care because I know I make a huge difference in the quality of a person’s life. I love that I can use my training as a nurse to bring comfort and dignity to my patients, and seeing the relief on their faces and on the faces of those who care for them. I love that I can offer practical solutions to patients and families and help them find more meaningful moments at the end of life.”

Hospice isn’t about dying it is about living as fully as possible despite a life-limiting illness.

What is Hospice Care?

Hospice care provides pain management, symptom control, psychosocial support, and spiritual care to patients and their families when a cure is not possible. The nation’s hospices serve more than 1.5 million people every year – and their family caregivers, too.

Hospice care is covered by Medicare, Medicaid, and most private insurance plans and HMOs.

Many people only consider hospice care in the final days of life, but hospice is ideally suited to care for patients and family caregivers for the final months of life.

What is Palliative Care?

Palliative care brings the same interdisciplinary team care as hospice to people earlier in the course of a serious illness and can be provided along with other treatments they may still be receiving from their doctor.

Hospices are the largest providers of palliative care services and can help answer questions about what might be most appropriate for a person.

Both hospice and palliative care combine the highest level of quality medical care with the emotional and spiritual support for patients of all ages, with any serious or life-limiting illness, and their caregivers.

Hospice and palliative care can make a profound difference and help maximize the quality of life for all those they care for. To learn more about hospice and palliative care, contact Karen Ann Quinlan Hospice 973-383-0115

Portable Medical Orders (POLSTs) vs Advance Directives

The NHPCO explains the differences between POLSTs and Advance Directives

A POLST is a part of the advance care planning process and communicates your wishes as medical orders. A POLST form consists of a set of medical orders that applies to a limited population of patients, such as seriously ill or frail persons, and addresses a limited number of critical medical decisions. A POLST has the option of specifying Do Not Resuscitate (DNR) but also makes provision for other types of treatment such as feeding tubes and mechanical ventilation. They will be filled out in consultation with your doctor.

What is a POLST?

A POLST communicates your wishes as medical orders, and so is prepared together with your doctor who will sign it. POLST’s have different names in different states, but all have the force of medical orders. POLST’s are specifically for the seriously ill or frail. POLST’s can travel with you and are honored by emergency medical technicians.

How is a POLST different from an advance directive or DNR (do not resuscitate)?

  • POLST = Portable Medical Orders.  Different states use different names such as POLST, POST, MOLST, MOST, etc. for their programs.
  • POLST is for people who are seriously ill or have advanced frailty. If you are healthy, an advance directive is for you. POLST forms and advance directives are both parts of advance care planning but they are not the same.
  • POLST forms must be filled out and signed by a health care provider. When you need a prescription, you go to your provider who writes or types an order for your prescription and signs it. POLST is a medical order so it is the same: you need to go to your health care provider who will write out the POLST and sign it. The difference with POLST is that you should have a good talk with your provider about what you want considering your current medical condition: What is likely to happen in the future? Treatment options? You’ll also be asked to sign your POLST form.
  • POLST forms tell other providers what you want. During a medical emergency, if you can talk, providers will ask you what you want. POLST forms are used only when you cannot communicate and you need medical care. When that is the situation, the POLST form orders providers to give you the treatments you chose.
  • POLST forms are out-of-hospital medical orders. This means that they are medical orders that travel with you. Wherever you are, your POLST form tells health care providers what treatments you want and your goals of care, even if you transfer from hospital to nursing home, back to your home, or to hospice or another setting.
  • POLST is voluntary. You make the choice about having a POLST form: you should never be forced to have one! If you are healthy, however, your provider may choose not sign a POLST form for you since it was designed for people who are seriously ill or have advanced frailty (some state laws do not allow providers to sign a POLST form unless you are seriously ill or have advanced frailty).
  • Advance Directives:  POLST’s give specific directions about treatments during an emergency if you cannot speak for yourself. However, POLSTs do not appoint someone to speak on your behalf which Advance Directives generally do. In a POLST, you specify exactly what you want and don’t want and for how long. They have the force of medical orders and must be honored by emergency medical technicians (EMT’s). EMT’s cannot honor advance directives or medical powers of attorney. Once emergency personnel have been called, they must do what is necessary to stabilize a person for transfer to a hospital, both from accident sites and from a home or other facility. After a physician fully evaluates the person’s condition and determines the underlying conditions, advance directives can be implemented.
  • Do Not Resuscitate (DNR’s):  A do-not-resuscitate order, or DNR order, is a medical order written by a doctor. It instructs healthcare providers not to do cardiopulmonary resuscitation (CPR) if a patient’s breathing stops or if the patient’s heart stops beating. If presented, it will be honored by EMT’s. A POLST has the option of specifying DNR but also makes provision for your choices around resuscitation and other types of treatment such as feeding tubes and mechanical ventilation.

How do you find the POLST for your state?

You may want to review your state’s form before you meet with your doctor. The National POLST website has lots of information on POLSTs in general and you will be able to find and review the one from your state. 

How Is Hospice Care Paid For?

The NHPCO answers some FAQs about how Hospice Care is paid for:

How is Hospice Care Paid For?

Hospice is most often paid for as a defined benefit of Medicare. However, hospice may also be paid for as part of a Medicare Advantage plan, by state Medicaid plans, or, in the case of children and others covered by private insurance, by private insurance. There may be different services covered by different sources of payment, so be sure to discuss the source of payment and the services that are covered with your hospice team.

Medicare and Medicaid

Medicare covers hospice care costs through the Medicare Hospice Benefit, which you can read about at Medicare.gov. If you’re in a Medicare Advantage Plan or other Medicare health plan, once your hospice benefit starts, Original Medicare will cover everything you need related to your terminal illness. Original Medicare will cover these services even if you choose to remain in a Medicare Advantage Plan or other Medicare health plan.

Veterans’ Administration (VA) benefits also cover hospice care.

The coverage of hospice care by Medicaid is optional and varies by state so be sure to read up at Medicaid.gov.

Private insurance

Many work-based and private insurance plans provide at least some coverage for hospice care. It’s best to check with your insurance company because there are different types of plans available that may or may not cover hospice services. There are also different ways a person can be considered eligible for hospice care and what costs are covered can vary based on the health plan you have.

Uninsured

For people who are not insured, or who may not have full coverage for hospice services, some hospice organizations may offer care at no cost or at a reduced rate based on your ability to pay. They can often do this because of donations, grants, or other sources. Nearly all hospices have financial support staff who can help you with this, answer your questions, and help you get the care you need.