Karen Ann Quinlan Hospice Reminds the Community that “#SoonerIsBetter!”
(Newton, NJ) – November is National Hospice and Palliative Care Month and hospice and palliative care programs across the country are reaching out to raise awareness about hospice and palliative care. Hospice is not a place but is high-quality care that enables patients and families to focus on living as fully as possible despite a life-limiting illness. Palliative care brings this holistic model of care to people earlier in the course of a serious illness.
“Every year, nearly 1.4 million people living with a life-limiting illness receive care from hospices in this country,” said Edo Banach, president and CEO of the National Hospice and Palliative Care Organization. “These highly-trained professionals ensure that patients and families find dignity, respect, and love during life’s most difficult journey.”
Hospice and palliative care programs provide pain management, symptom control, psychosocial support, and spiritual care to patients and their families when a cure is not possible.
Hospice and palliative care combines the highest level of quality medical care with the emotional and spiritual support that families need most when facing a serious illness or the end of life.
Throughout the month of November, Karen Ann Quinlan Hospice will be joining organizations across the nation hosting activities that will help the community understand how important hospice and palliative care can be.
More information about hospice, palliative care, and advance care planning is available from Karen Ann Quinlan Hospice by call 973-383-0115 or visiting our website at KarenAnnQuinlanHospice.org or from NHPCO’s CaringInfo.org.
Vides and stories from families showing the many ways hospice and palliative care make special moments possible can be found at www.momentsoflife.org.
The NHPCO answers some FAQs about how Hospice Care is paid for:
How is Hospice Care Paid For?
Hospice is most often paid for as a defined benefit of Medicare. However, hospice may also be paid for as part of a Medicare Advantage plan, by state Medicaid plans, or, in the case of children and others covered by private insurance, by private insurance. There may be different services covered by different sources of payment, so be sure to discuss the source of payment and the services that are covered with your hospice team.
Medicare and Medicaid
Medicare covers hospice care costs through the Medicare Hospice Benefit, which you can read about at Medicare.gov. If you’re in a Medicare Advantage Plan or other Medicare health plan, once your hospice benefit starts, Original Medicare will cover everything you need related to your terminal illness. Original Medicare will cover these services even if you choose to remain in a Medicare Advantage Plan or other Medicare health plan.
Veterans’ Administration (VA) benefits also cover hospice care.
The coverage of hospice care by Medicaid is optional and varies by state so be sure to read up at Medicaid.gov.
Many work-based and private insurance plans provide at least some coverage for hospice care. It’s best to check with your insurance company because there are different types of plans available that may or may not cover hospice services. There are also different ways a person can be considered eligible for hospice care and what costs are covered can vary based on the health plan you have.
For people who are not insured, or who may not have full coverage for hospice services, some hospice organizations may offer care at no cost or at a reduced rate based on your ability to pay. They can often do this because of donations, grants, or other sources. Nearly all hospices have financial support staff who can help you with this, answer your questions, and help you get the care you need.
Earlier today, an intimate group of hospice and palliative care leaders gathered in America’s town square, Times Square, NYC, to honor the life and legacy of former President Jimmy Carter. President Carter reaches the six-month milestone on hospice this week and continues to enjoy time with his family and loved ones in his hometown of Plains, Georgia.
Among those in attendance were several speakers: NHPCO COO and interim CEO, Ben Marcantonio; Susan Lloyd, CEO of Delaware Hospice; Jacqueline Lopez-Devine, Chief Clinical Officer (CCO) of Gentiva. NHPCO members are encouraged to write their own tributes to President Carter’s impact on the hospice and palliative care community using the hashtag #candlesforcarter. A recording of the event is available here.
News from the National Hospice and Palliative Care Organization:
Research Shows Hospice Produces Better Outcomes, Lower Medicare Costs
(Washington, D.C. and Alexandria, VA) – On Thursday, July 27, 2023, a panel of healthcare experts presented groundbreaking new research at a Capitol Hill briefing for Congressional offices, showing that patient use of hospice contributed to $3.5 billion in Medicare savings in 2019, while also providing multiple benefits to patients, families, and caregivers.
The study, conducted by NORC at the University of Chicago, is one of the most comprehensive analyses of enrollment and administrative claims data for Medicare patients covered by Medicare Advantage and Traditional Medicare. The study was funded by the National Association for Home Care & Hospice (NAHC) and the National Hospice and Palliative Care Organization (NHPCO).
Panelists Dianne Munevar, VP of Health Care Strategy at NORC; Dr. Joseph Shega, Chief Medical Office at Vitas; and Susan Lloyd, CEO of Delaware Hospice, related their vast experience with hospice care, extolling its benefit for patients and their loved ones, and also shared findings which prove that longer hospice stays equate to greater savings for taxpayers and overall, better experiences for patients.
Susan Lloyd, CEO of Delaware Hospice shared her personal experience with her mother’s end of life care. “The full benefits of hospice care are realized when the patient and family have the opportunity to engage with the team who provides the support needed wherever [the patient] calls home. Hospice is not a place, it’s a way of caring for people and their loved ones as they are nearing the end of life,” said Lloyd. “One of the greatest blessings of my life was to be there when my mom died. She was not alone; she was surrounded by love. Hospice made that happen for mom, for me, and my family.”
“There’s a lot of myths and misperceptions about what hospice is and what hospice does because of short stays,” said Dr. Joseph Shega, Chief Medical Officer of VITAS. “So when you have a short stay, the hospice does incredible work to try to meet [patients] where they are to honor their wishes […] but if somebody would have that conversation four, five, six, months earlier, they could have an experience like what Jimmy Carter is experiencing now, where he’s chosen he wants to be at home and there’s no difference in life expectancy between those who enroll in hospice earlier vs. those who don’t. With hospice, you can provide that care at home.”
Key findings from the Value of Hospice study include the following:
NORC estimates that Medicare spending for those who received hospice care was $3.5 billion less than it would have been had they not received hospice care.
In the last year of life, the total costs of care to Medicare for beneficiaries who used hospice was3.1 percent lower than for beneficiaries who did not use hospice.
Hospice is associated with lower Medicare end-of-life expenditures when hospice lengths of stay are 11 days or longer. In other words, earlier enrollment in hospice reduces Medicare spending even further.
Hospice stays of six months or more result savings for Medicare. For those who spent at least six months in hospice in the last year of their lives, spending was on average 11 percent lower than the adjusted spending of beneficiaries who did not use hospice.
At any length of stay, hospice care benefits patients, family members, and caregivers, including increased satisfaction and quality of life, improved pain control, reduced physical and emotional distress, and reduced prolonged grief and other emotional distress.
The choice for end-of-life care is deeply personal and should be made by patients, in consultation with loved ones and medical personnel, with a thorough understanding of the prognosis, the various care options available, and the implications of each of those options.
In a recent article published by The National Hospice and Palliative Care Organization, the organization sought to clear up some myths surrounding hospice care. Here’s one of them…
Myth: After entering end-of-life care, “patients don’t typically live long.”
Reality: The median length of stay in hospice care is 17 days and the average lifetime length of stay is 92.1 days, according to the Medicare Payment Advisory Commission.
By sharing information about his personal end-of-life journey, former President Carter has helped Americans understand this reality. President Carter entered hospice care in February 2023 and as of today has been on hospice for more than four months.
To qualify for hospice under Medicare, a patient must have a prognosis of six months or less to live if the disease runs its normal course. Some patients can and do outlive their prognosis, and in those cases the patient can be recertified for continued hospice care.
Study after study after study have shown that hospice patients tend to live longer than patients with similar diagnoses who do not choose hospice care. Research also shows that hospice care—at any length of stay—benefits patients, family members, and caregivers, including increased satisfaction and quality of life, improved pain control, reduced physical and emotional distress, and reduced prolonged grief and other emotional distress.
Hospice care focuses on quality of life when a cure is no longer possible, or the burdens of treatment outweigh the benefits. Some people think that their doctor’s suggestion to consider hospice means that death is very near. That is not always the case at all. People often don’t begin hospice care soon enough to take full advantage of the help it offers.
In the United States, people enrolled in Medicare can receive hospice care if their doctor thinks they have fewer than six months to live should their disease take its usual course. Doctors have a hard time predicting how long a person will live. Health often declines slowly, and some people might need a lot of help with daily living for more than six months before they die.
Talk with your doctor if you think a hospice program might be helpful. If they agree, but think it is too soon for Medicare to cover the services, then you can investigate other ways of paying for the services.
What happens if someone under hospice care lives longer than six months?
Hospice care can be initiated and continued so long as your doctor believes you likely have fewer than six months to live.
Sometimes, people receiving hospice care live longer than six months and the care can be extended. You can get hospice care for two 90-day benefit periods, followed by an unlimited number of 60-day benefit periods.
It is also possible to leave hospice care if a patient’s condition improves or they decide they wish to resume curative care and return to hospice care later.
What are the differences between each type of care?
Palliative: Palliative care is not hospice care: it does not replace the patient’s primary treatment; palliative care works together with the primary treatment being received. It focuses on the pain, symptoms and stress of serious illness most often as an adjunct to curative care modalities. It is not time limited, allowing individuals who are ‘upstream’ of a 6-month or less terminal prognosis to receive services aligned with palliative care principles. Additionally, individuals who qualify for hospice service, and who are not emotionally ready to elect hospice care could benefit from palliative services.
Hospice: Hospice care focuses on the pain, symptoms, and stress of serious illness during the terminal phase. The terminal phase is defined by Medicare as an individual with a life expectancy of 6-months or less if the disease runs its natural course. This care is provided by an interdisciplinary team who provides care encompassing the individual patient and their family’s holistic needs.
Who Can Receive Each Type Of Care?
Palliative: Any individual with a serious illness, regardless of life expectancy or prognosis, can receive palliative care.
Hospice: Any individual with a serious illness measured in months not years can receive hospice care. Hospice enrollment requires the individual has a terminal prognosis.
Can The Patient Still Received Curative Treatments?
Palliative: Yes, individuals receiving palliative care are often still pursuing curative treatment modalities. Palliative care is not limited to the hospice benefit. However, there may be limitations based on their insurance provider.
Hospice: The goal of hospice is to provide comfort through pain and symptom management, psychosocial and spiritual support because curative treatment modalities are no longer beneficial. Hospice should be considered at the point when the burden of any given curative treatment modalities outweighs the benefit coupled with prognosis. Other factors to consider and discuss, based on individual patient situations, are treatment modalities that no longer provide benefit due to a loss of efficacy.
How Long Can An Individual Receive Services?
Palliative: Palliative care is not time-limited. How long an individual can receive care will depend upon their care needs, and the coverage they have through Medicare, Medicaid, or private insurance. Most individuals receive palliative care on an intermittent basis that increased over time as their disease progresses.
Hospice: As long as the individual patient meets Medicare, Medicaid, or their private insurer’s criteria for hospice care. Again, this is measured in months, not years.
National Nurses Week is celebrated annually from May 6, also known as National Nurses Day, through May 12, the birthday of Florence Nightingale, the founder of modern nursing.
“Dependable, trustworthy, caring, Living for others, loving, sharing. At times wondering “Why am I a Nurse? Is it a Blessing or maybe a curse? “
Because, at times, Nurses are not appreciated, For the work to which their life is dedicated. However, Nurses know their job is worthwhile, when, after a hard day, a patient will smile.” —Excerpts from a poem by an author who simply calls herself Carlotta and a retired R.N with 41 yrs experience.
So just what is the definition of “nurse” and how did it arrive? Nursing has been called the oldest of arts and the youngest of professions. The history of nursing walks hand in hand with woman herself; but of course the meaning of the word nurse has changed over the course of centuries. The word nursing is derived from the Latin nutrire “to nourish” with its roots in the Latin noun nutrix which means “nursing mother” (This referring to a wet nurse who breast fed the babies of others). The original meaning of the English word was first used in English in the 13th century and its spelling underwent many forms, norrice, (from the French version of nourrice-a woman who suckled a child) nurice or nourice, to the present day, nurse.
By the 16th century the meanings of the noun included “a person, but usually a woman who waits upon or tends to the sick”. Two more components were added during the 19th century; training of those who tend to the sick and the carrying out of such duties under direction of a physician.
Women, because of maternal instincts, were considered “born nurses”. The parental instinct, however, is present in both sexes of all races. It is thought that women present a greater degree of this due to their traditional role in the family. “Yet the spirit of nursing has no sexual boundaries. Human beings of both sexes have a natural tendency to respond to helplessness or a threat to life from disease or injury.”- Donahue, 1996
In our ancient times, a woman cared for her own family. This expanded to taking care of members in her own tribe. As early civilizations progressed, so did nursing as it began to be performed outside the home. This development led to the inclusion and concentration on additional elements: skill, expertise, and knowledge. So as man learned more and more about disease, illnesses, and treating the injured, nursing evolved to become both a nurturing art and a science.
It is why today the head, the heart, and the hands have united to become modern day nursing’s foundation. In 1971, a nursing theorist by the name of Joyce Travelbee declared, “A nurse does not only seek to alleviate physical pain or render physical care – she ministers to the whole person. The existence of suffering, whether physical, mental or spiritual is the proper concern of the nurse”. (Travelbee, 1971).
The following is a Brief History of National Nurses Week
1953 Dorothy Sutherland of the U.S. Department of Health, Education, and Welfare sent a proposal to President Eisenhower to proclaim a “Nurse Day” in October of the following year. The proclamation was never made.
1954 National Nurse Week was observed from October 11 – 16. The year of the observance marked the 100th anniversary of Florence Nightingale’s mission to Crimea. Representative Frances P. Bolton sponsored the bill for a nurse week. Apparently, a bill for a National Nurse Week was introduced in the 1955 Congress, but no action was taken. Congress discontinued its practice of joint resolutions for national weeks of various kinds.
1972 Again a resolution was presented by the House of Representatives for the President to proclaim “National Registered Nurse Day.” It did not occur.
1974 In January of that year, the International Council of Nurses (ICN) proclaimed that May 12 would be “International Nurse Day.” (May 12 is the birthday of Florence Nightingale.) Since 1965, the ICN has celebrated “International Nurse Day.”
1974 In February of that year, a week was designated by the White House as National Nurse Week, and President Nixon issued a proclamation.
1978 New Jersey Governor Brendon Byrne declared May 6 as “Nurses Day.” Edward Scanlan, of Red Bank, N.J., took up the cause to perpetuate the recognition of nurses in his state. Mr. Scanlan had this date listed in Chase’s Calendar of Annual Events. He promoted the celebration on his own.
1981 ANA, along with various nursing organizations, rallied to support a resolution initiated by nurses in New Mexico, through their Congressman, Manuel Lujan, to have May 6, 1982, established as “National Recognition Day for Nurses.”
1982 In February, the ANA Board of Directors formally acknowledged May 6, 1982 as “National Nurses Day.” The action affirmed a joint resolution of the United States Congress designating May 6 as “National Recognition Day for Nurses.”
1982 President Ronald Reagan signed a proclamation on March 25, proclaiming “National Recognition Day for Nurses” to be May 6, 1982.
1990 The ANA Board of Directors expanded the recognition of nurses to a week-long celebration, declaring May 6 – 12, 1991, as National Nurses Week.
1993 The ANA Board of Directors designated May 6 – 12 as permanent dates to observe National Nurses Week in 1994 and in all subsequent years.
1996 The ANA initiated “National RN Recognition Day” on May 6, 1996, to honor the nation’s indispensable registered nurses for their tireless commitment 365 days a year. The ANA encourages its state and territorial nurses associations and other organizations to acknowledge May 6, 1996 as “National RN Recognition Day.”
1997 The ANA Board of Directors, at the request of the National Student Nurses Association, designated May 8 as National Student Nurses Day. –American Nurses Association.
The Florence Nightingale Pledge
I solemnly pledge myself before God and presence of this assembly; To pass my life in purity and to practice my profession faithfully.
I will abstain from whatever is deleterious and mischievous and will not take or knowingly administer any harmful drug.
I will do all in my power to maintain and elevate the standard of my profession and will hold in confidence all personal matters committed to my keeping and family affairs coming to my knowledge in the practice of my calling.
With loyalty will I endeavor to aid the physician in his work, and devote myself to the welfare of those committed to my care.
Happy Nurses Week to all nurses and thank you for choosing nursing!
All of the Hospice Honors 2023 event journals had a lucky number hidden in the book. The attendee with number 1349 is the recipient or two tickets to the 2023 Wine and Cheese Festival presented by the Friends of Hospice. The event will be held on Sunday, September 10 at the beautiful Water Wheel Farm in Fredon. To claim your tickets please contact Jennifer Smith at 973-383-0115. Congratulations.
Thank you to everyone, including the honorees, presenters and sponsors for making last night such a success. All proceeds from the event with benefit the Julia Quinlan Home for Hospice Endowment Fund.