Sorting out hospice care myths

In the living room, a grandfather laughs and plays video games with his granddaughters. Later, he joins the rest of his family to say grace before enjoying a meal together. Moments like these may seem ordinary to most. Would it surprise you to know that this grandfather, Robert, is dying and on hospice care?

Many people think that being on hospice means lying in a bed, barely conscious. Robert is a patient who proves that is not case. Many of his final moments were anything but ordinary, and they would not have been possible without the help of hospice.

Robert’s experience is not unique. The mission of Karen Ann Quinlan Hospice is to provide specialized care for end-of-life patients and their families. More simply, hospice care supports living one’s life to the fullest with dignity regardless of how much time remains.

When Robert was diagnosed with cancer, he “wondered if there was any chance of getting my quality of life back while I was still alive.” His answer, “I knew at that moment it was time to call hospice.”

Here are some of the common myths of hospice that need to be put to rest:

MYTH: Hospice care means leaving home.
FACT: Hospice services can be provided in a patient’s own home, a nursing home, long-term care facility or a hospice care center.
Hospice is not a place. In fact, hospice services can be provided to a terminally ill patient and his or her family wherever they are most comfortable, or wherever they consider “home.” Robert’s wish was to make sure he was able to stay home at the end of his life. Hospice made it possible for Robert’s son, Eric, and his family to move into Robert’s home and enjoy dinner together four to five times each week.

MYTH: Hospice means forgoing all medical treatment.
FACT: Hospice nurses and physicians are experts in the latest medications and devices for pain and symptom relief.
In every case, a hospice provider will assess the needs of the patient, deciding which medications and equipment are needed for maximum comfort. For example, Robert’s medical staff provided sleep medication to help him through the night. “I am speaking from the heart when I say hospice provides not only superb medical care, but also offers compassion that I would not have gotten anywhere else,” Robert said.

MYTH: Hospice means strangers care for you.
FACT: Hospice provides a dedicated team of specialists to suit the needs of each patient and educate family members to serve as caregivers.
Hospice organizations strive to educate family members to serve as the primary caregivers for an end-of- life patient. In addition, “The doctors, nurses, aides, social workers, therapists and chaplains who make up my hospice team are there whenever I need them,” Robert said, “All I have to do is pick up the phone and someone from hospice is there to help.”

MYTH: Hospice care ends when someone dies.
FACT: Hospice organizations offer bereavement services for all ages.
Hospice counseling services that deal specifically with grief and coping after the loss of a loved one are available at no cost for up to a year after someone dies. Robert’s son, Eric, credits hospice as something that he and his family can always look back and reflect on in a positive way.

MYTH: People on hospice are in bed, waiting to die.
FACT: Hospice enables special moments and memories at the end of a life that would otherwise not happen.

Robert called hospice because he wanted to live happily and with dignity, restoring a quality of life that he would have otherwise lost to invasive treatments and surgeries. In a final letter chronicling his hospice experience, Robert wrote, “If I inspire others to call hospice, I know I’ve made a difference.”

To learn more about how hospice can help you and your family please call Karen Ann Quinlan Hospice at 973-383-0115.

Julia’s 90th Birthday Celebration – Photo Gallery

Julia Quinlan, co-founder and President of Karen Ann Quinlan Hospice recently celebrated her 90th birthday at the Annual High Tea for Hospice on February 23, 2017. The event, hosted by Friends of Hospice was held at the Lake Mohawk Country Club. We would like to thank all who attended for making the day extra special for Julia.

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Sussex Bank Foundation Donates to Capital Campaign

The Sussex Bank Foundation recently donated $6,000 to Karen Ann Quinlan Hospice. The donation with be used for the Joseph T. Quinlan Bereavement Center Capital Campaign. 

A portion of the donation was raised during the 2016 Sussex Bank Foundation Inc. Golf Outing. The event was held on May 23 at Crystal Springs, Wild Turkey. The mission of the SB Foundation, Inc., is to support the local charities in the communities they serve in order to make a positive impact and help them be an agent for good. 

This year’s outing will be held on Monday, May 17, at the Montclair Golf Club. More information about this year’s outing can be found at https://www.sussexbank.com/events/golf-outing/

SB Foundation, Inc., recently donated $6,000 to the Joseph T. Quinlan Bereavement Center Capital Campaign. Left to right: John Quinlan, Director of Foundation at Karen Ann Quinlan Hospice; Keri Marino of Sussex Bank and member of the Karen Ann Quinlan Charitable Foundation; Julia Quinlan, Co-founder of Karen Ann Quinlan Hospice; Cecelia Clayton, Executive Director at Karen Ann Quinlan Hospice and Dawn Machacek, Marketing Director at Sussex Bank.

We would like to thank the SB Foundation Inc., for their generous donation and continued support and partnership.

Myths of Hospice Care

In the living room, a grandfather laughs and plays video games with his granddaughters. Later, he joins the rest of his family to say grace before enjoying a meal together. Moments like these may seem ordinary to most. Would it surprise you to know that this grandfather, Robert from Buffalo, NY, is dying and on hospice care?

Many people think that being on hospice means lying in a bed, barely conscious. Robert is a patient who proves that is not case. Many of his final moments were anything but ordinary, and they would not have been possible without the help of hospice.

Robert’s experience is not unique. The mission of hospice is to provide specialized care for end-of-life patients and their families. More simply, hospice care supports living one’s life to the fullest with dignity regardless of how much time remains.

When Robert was diagnosed with cancer, he “wondered if there was any chance of getting my quality of life back while I was still alive.” His answer, “I knew at that moment it was time to call hospice.”

Here are some of the common myths of hospice that need to be put to rest:

MYTH: Hospice care means leaving home.

FACT: Hospice services can be provided in a patient’s own home, a home for hospice, a nursing home, long-term care facility or a hospice care center. Hospice is not a place. In fact, hospice services can be provided to a terminally ill patient and his or her family wherever they are most comfortable, or wherever they consider “home.” Robert’s wish was to make sure he was able to stay home at the end of his life. Hospice made it possible for Robert’s son, Eric, and his family to move into Robert’s home and enjoy dinner together four to five times each week.

MYTH: Hospice means forgoing all medical treatment.

FACT: Hospice nurses and physicians are experts in the latest medications and devices for pain and symptom relief. In every case, a hospice provider will assess the needs of the patient, deciding which medications and equipment are needed for maximum comfort. For example, Robert’s medical staff provided sleep medication to help him through the night. “I am speaking from the heart when I say hospice provides not only superb medical care, but also offers compassion that I would not have gotten anywhere else,” Robert said.

MYTH: Hospice means strangers care for you.

FACT: Hospice provides a dedicated team of specialists to suit the needs of each patient and educate family members to serve as caregivers. Hospice organizations strive to educate family members to serve as the primary caregivers for an end-of- life patient. In addition, “The doctors, nurses, aides, social workers, therapists and chaplains who make up my hospice team are there whenever I need them,” Robert said, “All I have to do is pick up the phone and someone from hospice is there to help.”

MYTH: Hospice care ends when someone dies.

FACT: Hospice organizations offer bereavement services for all ages. Hospice counseling services that deal specifically with grief and coping after the loss of a loved one are available at no cost for up to a year after someone dies. Robert’s son, Eric, credits hospice as something that he and his family can always look back and reflect on in a positive way. “As difficult as it was, it was really special to all be together. My wife and I talk about it all the time now,” Eric said.

MYTH: People on hospice are in bed, waiting to die.

FACT: Hospice enables special moments and memories at the end of a life that would otherwise not happen. Robert called hospice because he wanted to live happily and with dignity, restoring a quality of life that he would have otherwise lost to invasive treatments and surgeries. In a final letter chronicling his hospice experience, Robert wrote, “If I inspire others to call hospice, I know I’ve made a difference.”

BIGGS Kids donates to Capital Campaign

Steve Bieganousky, founder of BIGGS Kids presents a check for $10,000 to members of the Joseph T. Quinlan Bereavement Center capital campaign. From left: Diana Sebzda, Director of Bereavement, Steven Bieganousky, Julia Quinlan, Co-founder Karen Ann Quinlan Hospice and Robin Tomlinson, V.P. Branch Sales Manager at Sussex Bank.

 

Steve Bieganousky, founder of the Steven P. Bieganousky Foundation for Children, Inc., presented a check for $10,000 to Joseph T. Quinlan Bereavement Capital Campaign committee members. The donation will benefit the Family Therapy/Children’s Art Room at the new, permanent home of the Bereavement Center on 5 Plains Road in Augusta. The Bereavement Center, currently located on 61 Spring Street in Newton, expects to take residence in the new center in early April.

Steven P. Bieganousky was a 21 year-old Sparta resident who died suddenly in a car accident on March 27, 2005. His father Steve Bieganousky wants to make sure his son’s devotion to children lives on.

“It was heart warming to know that Steven had positively touched people’s lives of
all ages.” -Steven Bieganousky

The Bieganousky family founded The Steven P. Bieganousky Foundation for Children, Inc., an organization (also known as BIGGS Kids) dedicated to raising funds to benefit area youngsters.

Money raised through the foundation will be distributed to local agencies providing educational, recreational and health programs for children in Sussex County.

Although The Bieganousky’s know nothing will ever make things the way they were when Steven was here, they believe the new foundation is a fitting tribute and the perfect legacy for a son taken too soon.

“I was so proud – it was what kept me going – he is my hero.” -Steven Bieganousky

BIGGS Kids MISSION:

  • Raise awareness for the needs of children at risk.
  • Be a source of financial support to qualified local organizations that provide opportunities to make a positive difference in a child’s life.
  • Maintain a high level of integrity throughout the fundraising process and disbursement of funds.
  • Attain these goals as Steven would in a loving, caring way, not being afraid to speak on behalf of a child’s defense.

For those wanting to learn more about the Joseph T. Quinlan Bereavement Center’s capital campaign or BIGGS Kids please call 973-383-0115. The Joseph T. Quinlan Bereavement Center provides grief support and counseling for hospice families and the community free of charge. The staff works to bring comfort and understanding to help families through difficult times. Individual counseling and ongoing support groups are offered. Support groups include: anticipatory grief support, school bereavement support, memorial services, grief lecture series, children’s bereavement art program and pet loss support.

 

Bump named Hospice Chaplain

Karen Ann Quinlan Hospice is pleased to announce the appointment of Dawn Bump to the position of Chaplain. Bump has been with Karen Ann Quinlan Hospice for four years beginning her relationship as a volunteer in the Sussex County area. 

“Presently, I am working towards becoming a Board Certified Chaplain, which at some point will be the standard.”

Upon graduating and ordination in 2015, Bump became a Chaplain Intern while working through her Clinical Pastoral Education. Bump’s Interfaith background has been pivotal to her chaplaincy. She is devoted to working with the terminally ill and their families. Bump’s primary area of service will be to the residents of Pike County and surrounding areas.

Chaplain Bump can be reached by calling 570-296-3591. She is based in the Milford, Karen Ann Quinlan Hospice office located on 104 Bennett Avenue, Suite 2A-2 in Milford, PA. If you know a family that is struggling to come to terms with a terminal diagnosis, please reach out to us to discuss the options.

Who chooses my hospice provider?

You do. It can be in consultation with your physician or you may consult with the hospice of your choice. According to Medicare today, “a patient is free to choose any qualified agency offering him/her services.” Your physician or the hospice professional staff can determine if your illness is hospice appropriate according to Medicare/Medicaid guidelines.

Sadly when you or family members speak to the doctor or a hospital social services department about hospice, asking the right questions can come with a lump in your throat. Once we come face to face with that difficult decision, it will be a very trying time; a loved one has been diagnosed with a terminal illness.

When met with the prospect of hospice care, first ask for what hospices are available and then if you need to get information from the hospice of your choice, there are very basic questions that should be asked.

• What specific services are offered?

• How often will a nurse or hospice staff visit?

• Are they accredited?

• Is care available seven days a week, 24 hours a day?

• Does the hospice provide pharmacy and home health equipment?

• What social services are available?

• What spiritual support and/or anticipated grief counseling is provided?

• Do they have certified trained volunteers?

• Can the hospice provide services in a nursing home, hospital or a home for hospice?

Patients have the basic right:

• To choose any Medicare-certified agency.

• To be told when Medicare will not cover a service.

• To receive services the doctor ordered.

• To be involved in care planning.

• To choose to transfer to another hospice provider if unhappy with current agency.

Thanks to Thorlabs

Click on the photo to learn more about the Joseph T. Quinlan Bereavement Center

We like to thank Thorlabs for allowing us to present at the Sussex County Chamber of Commerce B2B breakfast on Tuesday January 10. We were able to announce the location of the new permanent home of the Joseph T. Quinlan Bereavement Center to over 250 Chamber members. Here’s a quick overview of our presentation. If you would like to donate to the capital campaign to help us with the purchase please visit www.KarenAnnQuinlanHospice.org/Capital

New Year’s Resolution – Prepare Advance Directive

All adults can benefit from thinking about what their healthcare choices would be if they are unable to speak for themselves.  These decisions can be written down in an advance directive so that others know what they are.  Advance directives come in two main forms:

  • PROXY DIRECTIVE(Durable Power of Attorney for Healthcare)
    A proxy directive is a document you use to appoint a person to make healthcare decisions for you in the event you become unable to make them yourself. This document goes into effect whether your inability to make healthcare decisions is temporary because of an accident or permanent because of a disease. The person that you appoint is known as your “healthcare representative” and they are responsible for making the same decisions you would have made under the circumstances. If they are unable to determine what you would want in a specific situation they are to base their decision on what they think is in your best interest.
  • INSTRUCTION DIRECTIVE(Living Will)
    An instruction directive is a document you use to tell your physician and family about the kinds of situations you would want or not want to have life-sustaining treatment in the event you are unable to make your own healthcare decisions. You can also include a description of your beliefs, values, and general care and treatment preferences. This will guide your physician and family when they have to make healthcare decisions for you in situations not specifically covered by your advance directive.

 

ADVANCE DIRECTIVE:  Your Right to Make Health Care Decisions

 You have the right to:

  • Ask questions about your care.
  • Completely understand your medical condition.
  • Accept or refuse any treatments.
  • Make future decisions by completing an Advance Directive.
  • If you have a life-limiting illness – you have the right to choose the hospice of your choice.

Karen Ann Quinlan Hospice has ready-made packets with current Living Will information available FREE.  Please stop by our office at 99 Sparta Ave, Newton, NJ and request one at the desk.  You may call us at 973-383-0115, or at 800-882-1117 and we will have one mailed to you.

Subaru Annual Share the Love Event

share_the_love_event_horiz_newCHERRY HILL, NJ,  – Subaru of America, Inc. has announced the return of its annual Share the Love Event in 2016. This year, for the first time throughout the life of the program, there will be no cap on the total donation from Subaru of America to its Share the Love charitable partners. By the end of this year’s event, Subaru hopes to exceed a grand total of $90 million donated since the creation of Share the Love.

From November 17, 2016 to January 3, 2017, Subaru will donate $250 for every new Subaru vehicle sold or leased to the customer’s choice of charities. In addition to the four national charity partners, Subaru has chosen Karen Ann Quinlan Hospice to be the hometown charity for their customers to support. With some retailers again adding their own donations to the hometown charities, total donations by Subaru and its participating retailers are expected to exceed previous years.

“We at Subaru are thrilled to support our national and hometown charity partners for the ninth consecutive year,” said Alan Bethke, Senior Vice President of Marketing, Subaru of America Inc. “Through the Share the Love platform we are proud to continue our commitment to the causes our customers care about most and look forward to exceeding a grand total of $90 million donated through this initiative.”

 

Osterlof Foundation donates to Bereavement Center Capital Campaign

On Tuesday, organizers of the Osterlof Open donated a check for $12,000 to the Karen Ann Quinlan Hospice. The funds will benefit the capital campaign for the Joseph T. Quinlan Bereavement Center.

The funds were raised during the Annual Osterlof Open which was held on June 16 at Crystal Springs Resort. 

The Carl T. Osterlof Foundation was started by Carl T. Osterlof’s wife, Joan and their eight children as a way to honor his memory and charitable virtues. The Open, ran by the friends and family of the late Osterlof, is a way to raise funds and awareness for charitable causes using his favorite leisure pastime, golf.

This year, in memory of Bonnie Synol’s husband Doug Synol, who was a patient of Karen Ann Quinlan Hospice, proceeds from the outing were donated to the Joseph T. Quinlan Bereavement Center. 

Doug Synol was a longtime member of the Osterlof Golf tournament committee.

Carl Osterlof presents a check for $12,000 to Julia Quinlan, Co-founder of Karen Ann Quinlan Hospice. Pictured left to right: Carl Osterlof, Cecelia Clayton, Bonnie Synol, Julia Quinlan and John Mauthe.

2016 Christmas Cookie Exchange

cookiebakeVolunteers were on hand  at the 16th Annual Cookie Exchange at Karen Ann Quinlan Hospice. Volunteers baked and wrapped trays of cookies to bring to our patients, families and those in our bereavement program. Hospice home care volunteers delivered the cookies to homes in Sussex, Warren and Pike counties. The event was organized by Sue Dougherty, volunteer coordinator. Thank you to all the volunteers who helped bake, wrap and deliver a bit of season to our patients.

Friends donate $33,300

 

friendsofhospicecheck

The Friends of Hospice, a group of volunteers who raise funds for the Karen Ann Quinlan Hospice, recently donated a check in the amount of $33,300 to the hospice. The group sponsors several fundraisers during the year most notably the Wine and Cheese Festival, High Tea for Hospice and a Harley Davidson motorcycle raffle. Their donations enable the not-for-profit hospice to purchase items that may be needed for patient comfort and business operating efficiency.

 

The group, open to anyone in the community, meets the second Monday of each month at the Karen Ann Quinlan administrative office, located on 99 Sparta Avenue in Newton. More information about Karen Ann Quinlan Hospice and volunteering can be found online at KarenAnnQuinlanHospice.org

 

Featured in the photo from left to right: Bea Smith, Gay Van Etton, Lisa O’Hara, Julia Quinlan, Co-Founder of Karen Ann Quinlan Hospice, Nancy Gallo and Gail Burckes